Perpetual Care Trust was established to give peace of mind to aging parents by ensuring continued care for their adult disabled children when their parents are no longer able to provide for them or have passed away.
It's understandable and completely realistic to have significant fears about old age when you are caring for adult disabled children and your wife has a heart condition.
The challenges parents experience in opening bank accounts for their disabled children (the preferred safe option as opposed to finding a safe ATM every month to withdraw grants), highlight a significant gap in the banking system, as my children cannot go into a bank to open their own bank accounts.
Mitochondrial diseases are chronic (long-term), genetic, disorders that occur when mitochondria fail to produce enough energy for the body to function properly.  Mitochondrial diseases can be present at birth but can also occur at any age.
