This transition encompasses significant practical and emotional dimensions that affect the entire family. The following areas require thoughtful support and planning:

 

Supporting Pieter and Leona

 

Emotional and Practical Transition Support

• Navigating the emotional complexity of this life change after nearly five decades of dedicated caregiving

• Understanding their ongoing role and the level of involvement they can maintain in Anke and Markus's daily care

• Receiving guidance on gradually adjusting their daily routines and rediscovering their identity beyond full-time caregiving

 

Financial and Future Planning

• Securing financial assistance to afford the long-term residential care costs at Aurora Special Care Centre

• Planning for their own evolving care needs as they age

• Ensuring sustainable arrangements that provide peace of mind for the family's future

 

Supporting Anke and Markus

 

Medical Care Continuity

• Ensuring seamless continuation of medical care for their mitochondrial disorder

• Facilitating comprehensive communication with Aurora Special Care Centre regarding their specific medical needs and detailed care history

• Coordinating with current healthcare providers to ensure smooth medical transitions

 

Dignity and Comfort in Transition

• Preserving their dignity throughout the transition process

• Maintaining familiar routines and comfort that provide stability

• Implementing a gradual introduction to new caregivers and the residential environment to minimise distress

• Ensuring their needs and preferences are heard and respected in all care decisions